This list was compiled by Kathy Knight < kathy1024@WEBTV.NET. >
She updates it periodically and puts it out on the BRAINTMR list.
Subject: B.T. SURFING SITES - These are sites to start with, by no means a complete list.
I have reformatted the data,   and added some information.


"VIRTUAL TRIALS" AL MUSELLA'S SITE  http://virtualtrials.com     (A great starting place for information)

The Healing Exchange Brain Trust T.H.E. BRAIN TRUST (includes the BRAINTMR list) http://www.braintrust.org

JIM KENZIGS SITE A list of brain tumor links (over 650 of them) http://www.virtualtrials.com/btlinks

DAN COLILLA'S BRAIN TUMOR INFORMATION WEB SITE Dan Colilla-- [father dx gbm] http://www.erols.com/colilla/

 

National Brain Tumor Organizations

The ABTA, the NBTF, will send booklets.

North American Brain Tumor Coalition
c/o Ropes & Gray, 1301 K Street, NW, Suite 800 East, Washington, DC 20005
Web:  http://www.nabraintumor.org
This is a coalition of many of the US and Canadian national brain tumor organizations formed to present a brain tumor united front to our politicians.
American Brain Tumor Association, http://www.abta.org
2720 River Rd, Des Plaines, IL 60018 Phone: 800-886-2282 E-Mail: info@abta.org
ABTA PRIMER URL -- 7th. ed.http://www.abta.org/primer

NBTF-National Brain Tumor Foundation, Email: mailto:nbtf@braintumor.org
Web http://www.braintumor.org
National Brain Tumor Foundation 414 Thirteenth Street, Suite 700 Oakland, CA 94612-9260
Patient Services: 1-800-934-CURE

TBTS-The Brain Tumor Society http://www.tbts.org
124 Watertown St, Suite 3-H, Watertown, MA 02472 Phone: 800-770-8287
There are literature, counseling, pen pals, newsletters, phone pals, etc., available.

SOUTH FLORIDA BRAIN TUMOR ASSOCIATION Has many links to other sites -- http://www.angelfire.com/fl3/SFBTA

 


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SECOND OPINION ARTICLE URL: http://cancerguide.org/second_opinion.html

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Clinical Trials  

http://cancer.gov/clinicaltrials/

http://clinicaltrials.gov

 

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Discounted Or Free Air Transportation
Fri, 26 Apr 2002 from BRAINTMR
From: David Edge <"mailto:d.edge@CODETEL.NET.DO">
Subject: Support: Dear Jenni;
Free Airline tickets
A) Corporate Angel Network http://www.corpangelnetwork.org/
Provides free air transportation for cancer patients travelling to or from
recognized treatment centers in the United States, without regard to their
financial resources.


B) Airlifeline http://www.airlifeline.org
Airlifeline pilots assist ambulatory patients who must receive
life-sustaining treatment at a medical facility far from home and cannot
afford the cost of travel.


c) Aircare http://www.aircareall.org
Alliance and the National Patient Air Transport Helpline (NPATH)
Using their own time and general aviation aircraft, pilot members of these
organizations help patients travel to medical facilities when financial need
or other compelling circumstances would prevent them from doing so otherwise.


D) Dreamline http://www.bobiverson.com/dreamline/
Our mission is to provide free airline / vacation travel for children
currently undergoing and/or recovering from a brain tumor, cancer, or
leukemia. Founded in August of 1998 by Robert A. Iverson, Jr., our program
is underwritten by individual and corporate sponsors who donate
frequent-flyer mileage, airline perks, discount coupons, travel vouchers,
special services, and cash contributions.

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Additional Resources

 

Cancer Fund of America- Provides all FREE basic living needs, shampoo, candy, toys, clothes, advil, box floor fan and many, many other items. "http://www.cfoa.org"

Compassion Partners-Provides FREE tickets to any of the amusement parks, such as Disney, Seaworld,Universal Studios, Islands of Adventure, Epcot. Must have "terminal" or "life threatening" illness verified by your doctor. The number to call is 407-396-1114. The lady you need to talk to concerning these free tickets is Donna.

Bellsouth also offers approx. $12.00 off of your phone bill per month if you are on medicaid.

Tim and Tom Gullikson Scholarship Foundation will give scholarships to children whose parent/parents have(or had) a brain tumor.

"http://www.crossingthefinishline.org"- Will give FREE 1 week all expense paid to those with a diagnosis of cancer and their caregiver. Needs verification by doctor. Children allowed if feasible.

Open to those only in the states of PA, NJ and DE. Must be between the ages of 18-50 years.

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Sites about the end of life stages and the dying process:

"http://www.geocities.com/alamebrain2000/" This one is from a BT perspective.

"http://www.crossingthecreek.com/"