| Brain Tumor Information on the Web |
Virtualtrials.com
Sponsored by Musella Foundation -
This is one of THE best sites for information about brain tumors and is where we send our newly diagnosed patients and families. There is information about the different types of brain tumors, many of the treatments (radiation, chemo, gene therapy, vaccines, etc), the brain tumor Centers of Excellence, the best neurosurgeons and neuro-oncologists (and how to contact them for second opinions), brain tumor organizations, local support groups, online support groups, books about brain tumors, many videos that were filmed at the various brain tumor conferences around the United States and much more. They also sponsor the Brain Tumor Treatments yahoo group which has over 1200 members worldwide.
New Jersey Neuroscience Institute
The NJNI Brain Tumor Center stands at the forefront in the diagnosis and treatment of primary and metastatic tumors of the brain and spinal cord. The multidisciplinary team of specialists employs the latest breakthroughs in research, medical technology, techniques and treatments available. The expertise of the team puts emphasis on new developments in treatment and participation in clinical trials. Together, the team ensures that comprehensive, coordinated care is available to guide each patient and his/her family through diagnosis, treatment and recovery.
The Cancer Institute of NJ
As one of the nation's 40 National Cancer Institute-designated Comprehensive Cancer Centers and the only one in New Jersey, The Cancer Institute of New Jersey (CINJ) delivers advanced comprehensive care to adults and children, and conducts cutting-edge cancer research. Our researchers and physicians transform discoveries into clinical practice and provide education and outreach regarding cancer prevention, detection and treatment.
Social Security Compassionate Allowances
A complete list of compassionate allowances conditions - very helpful when filing for disability
ClinicalTrials.gov
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.
Heroes of Hope - The Grey Ribbon Crusade
The Heroes of Hope initiative seeks to create dynamic action in the drive for funding of brain tumor research through a synergistic approach. The program invites the general public and those in the brain tumor community to join the Grey Ribbon Crusade and become part of a united force against brain tumors to increase visibility through a strong national brand allowing the utilization of a combined scale of accomplishments and resources while preserving individual and organizational goals, without additional layers of financial commitment.
Take a Break from Cancer
enables cancer patients and their loved ones the opportunity to strengthen, deepen and unify their relationships by creating unforgettable and lasting respite vacations. To be considered for a Respite Vacation, a patient must (a) Have a physician diagnosis of cancer (b) Be between the ages of 24-50 and (c)
Reside in Pennsylvania, New Jersey, or Delaware. Full requirements are on their website under the "Program" tab.
Braintrust.org
Provide support services for people affected by brain tumors and related conditions, including patients and families, professionals and researchers. The Braintrust also hosts many "online support groups for people who can't attend a local support group. They have the BRAINTMR list as well as tumor specific groups for Meningiomas, Ependymomas, Oligodendrogliomas, CNS Lymphoma, Spinal Tumors, Young Adults with BTs, Adult Brain Stem Gliomas and a Caregivers group.
American Brain Tumor Association
Reliable trusted information about brain tumors and their treatments
National Brain Tumor Society
National Brain Tumor Society (NBTS) is a leader in the brain tumor community,
bringing together the best of research and patient services to be a
comprehensive resource for patients, families, caregivers, researchers, and
medical professionals with offices on both coasts and activities and influence around the United States.
Florida Brain Tumor Association
A place for brain tumor survivors and families who are searching for support and a safe place to share their life changing experiences
Second Opinion information
Cancer Guide second opinions - why, when and who
Cancer.gov
Search for clinical trials on National Cancer Institute
Discounted Or Free Air Transportation:
- Corporate Angel Network
Provides free air transportation for cancer patients travelling to or from recognized treatment centers in the United States, without regard to their financial resources. - Airlifeline
Airlifeline pilots assist ambulatory patients who must receive life-sustaining treatment at a medical facility far from home and cannot afford the cost of travel. - Aircare
Alliance and the National Patient Air Transport Helpline (NPATH) Using their own time and general aviation aircraft, pilot members of these organizations help patients travel to medical facilities when financial need or other compelling circumstances would prevent them from doing so otherwise.
Southeastern Brain Tumor Foundation
A foundation devoted to funding a cure for brain tumors and providing support and outreach to brain tumor patients and their families throughout the Southeast.
Children's Brain Tumor Foundation
A non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Voices Against Brain Cancer
Their mission is to find a cure for brain cancer by advancing scientific research, increasing awareness within the medical community and supporting patients and families afflicted with this devastating disease.
The Brain Tumor Awareness Organization
The mission of the Brain Tumor Awareness Organization is to raise awareness for brain tumors on a local, state and national level through an online resource community for patients, advocates and caregivers and reduce the burden of this disease through interaction.
Brain Tumor Foundation of Canada
Brain Tumor Foundation of Canada's mission is to reach every person in Canada affected by a brain tumor through support, education, information and research.
Tug McGraw Foundation
"Ya Gotta Believe"-- The Tug McGraw Foundation was established in 2003 to enhance the quality of life of children and adults with brain tumors and in 2009 expanded programs to include Post-Traumatic Stress Disorder, (PTSD), and Trauma Brain Injury, (TBI). We collaborate and partner with other organizations so that we can accelerate new treatments and cures to improve quality of life in areas of physical, social, emotional, cognitive, and spiritual impact of those debilitating conditions.
Cancer Fund of America
rovides all FREE basic living needs, shampoo, candy, toys, clothes, advil, box floor fan and many, many other items.
Sites about the end of life stages and the dying process: - Seeking Peace - Brain Tumor Hospice Care
A site so that caregivers approaching this important new junction may recognize and understand end-stage events that are likely to happen, as well as find support in providing the best of loving care during this critical time. - Crossing the Creek
Practical Guide To Understanding Dying Process